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Posted: 1/8/2024 5:16:12 PM EDT
[#1]
Quote HistoryOriginally Posted By patw: I am glad to hear you and your family are doing well and they are watching for/helping you. That's very important as we all know. We never know where/how are lives will lead us but in all seriousness, I pray you may find the Lord if you don't have Him already. He offers/gives eternal peace. I know He has blessed and been with my family with our health issues over the years. As I get older, I find myself needing Him more and more, as we are just flowers that will fade away but He remains forever, 1 Peter 1:24-25. I will pray for you and your family as well. Thank you |
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FL, USA
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Posted: 1/8/2024 7:29:34 PM EDT
[#2]
Damn, that's sucks dude. Are you in the Space Coast/Orlando area?
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Posted: 1/8/2024 7:54:07 PM EDT
[#3]
Quote HistoryOriginally Posted By AR18: Damn, that's sucks dude. Are you in the Space Coast/Orlando area? thanks, west of there |
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FL, USA
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Posted: 1/9/2024 1:18:18 AM EDT
[#4]
Quote HistoryOriginally Posted By Banditman: thanks, west of there Quote HistoryOriginally Posted By Banditman: Originally Posted By AR18: Damn, that's sucks dude. Are you in the Space Coast/Orlando area? thanks, west of there I couldn't remember where you stated your general location was. I got you mixed up with Great Dane location. If like anything, we are here for you. |
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Posted: 3/4/2024 8:43:29 PM EDT
[#5]
Update
I am doing about the same but have been suffering spacisity in my legs at night and is really disrupting my sleep. Meds I am taking for it are not working well, may have to switch to different drug/s. I am participating in a drug trial for ALS drugs. None are a cure. But they may slow or possibly stop progression of the disease. It is a double blind study. I have a 3 out of 4 chance that I am getting a drug instead of placebo. After 6 months Everyone gets a real drug. They took blood samples and strength tests and did a spinal tap and took fluid. I will go in at different intervals and repeat the tests and that will give them data about the drug's performance. I appreciate the prayers |
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Posted: 3/4/2024 8:50:03 PM EDT
[#6]
Stay strong my friend.
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Posted: 3/4/2024 9:06:45 PM EDT
[#7]
Quote HistoryOriginally Posted By osprey21: Stay strong my friend. Doing my best, friend |
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Posted: 3/4/2024 9:16:08 PM EDT
[#8]
Quote HistoryOriginally Posted By Banditman: Doing my best, friend  |
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Posted: 3/5/2024 12:37:41 PM EDT
[#9]
Quote HistoryOriginally Posted By Banditman: Update I am doing about the same but have been suffering spacisity in my legs at night and is really disrupting my sleep. Meds I am taking for it are not working well, may have to switch to different drug/s. I am participating in a drug trial for ALS drugs. None are a cure. But they may slow or possibly stop progression of the disease. It is a double blind study. I have a 3 out of 4 chance that I am getting a drug instead of placebo. After 6 months Everyone gets a real drug. They took blood samples and strength tests and did a spinal tap and took fluid. I will go in at different intervals and repeat the tests and that will give them data about the drug's performance. I appreciate the prayers |
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Posted: 3/5/2024 1:39:50 PM EDT
[#10]
Quote HistoryOriginally Posted By BayEagle: Praying hard for that! Quote HistoryOriginally Posted By BayEagle: Originally Posted By Banditman: Update I am doing about the same but have been suffering spacisity in my legs at night and is really disrupting my sleep. Meds I am taking for it are not working well, may have to switch to different drug/s. I am participating in a drug trial for ALS drugs. None are a cure. But they may slow or possibly stop progression of the disease. It is a double blind study. I have a 3 out of 4 chance that I am getting a drug instead of placebo. After 6 months Everyone gets a real drug. They took blood samples and strength tests and did a spinal tap and took fluid. I will go in at different intervals and repeat the tests and that will give them data about the drug's performance. I appreciate the prayers thank you |
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FL, USA
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Posted: 3/5/2024 2:24:28 PM EDT
[#11]
Sister in law succumbed to ALS last year. It’s a tough road.
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Posted: 3/5/2024 8:29:30 PM EDT
[#12]
Quote HistoryOriginally Posted By Banditman: Update I am doing about the same but have been suffering spacisity in my legs at night and is really disrupting my sleep. Meds I am taking for it are not working well, may have to switch to different drug/s. I am participating in a drug trial for ALS drugs. None are a cure. But they may slow or possibly stop progression of the disease. It is a double blind study. I have a 3 out of 4 chance that I am getting a drug instead of placebo. After 6 months Everyone gets a real drug. They took blood samples and strength tests and did a spinal tap and took fluid. I will go in at different intervals and repeat the tests and that will give them data about the drug's performance. I appreciate the prayers You're in my thoughts constantly... I pray you find peace and comfort during your journey and I hope the best for you and your family going forward. |
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Posted: 3/5/2024 8:52:26 PM EDT
[#13]
Quote HistoryOriginally Posted By Bowhntr6pt: You're in my thoughts constantly... I pray you find peace and comfort during your journey and I hope the best for you and your family going forward. Quote HistoryOriginally Posted By Bowhntr6pt: Originally Posted By Banditman: Update I am doing about the same but have been suffering spacisity in my legs at night and is really disrupting my sleep. Meds I am taking for it are not working well, may have to switch to different drug/s. I am participating in a drug trial for ALS drugs. None are a cure. But they may slow or possibly stop progression of the disease. It is a double blind study. I have a 3 out of 4 chance that I am getting a drug instead of placebo. After 6 months Everyone gets a real drug. They took blood samples and strength tests and did a spinal tap and took fluid. I will go in at different intervals and repeat the tests and that will give them data about the drug's performance. I appreciate the prayers You're in my thoughts constantly... I pray you find peace and comfort during your journey and I hope the best for you and your family going forward. Thank you |
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Posted: 3/5/2024 8:52:53 PM EDT
[#14]
Hope your recovery from the surgery goes well.
Best wishes as you go through this, as we all do, I wish there was something we could do to help. |
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Posted: 3/29/2024 12:15:07 AM EDT
[#15]
Just saw this and learned of your journey. Prayers and more prayers for you and your loved ones.
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Posted: 3/29/2024 8:02:10 AM EDT
[#16]
Quote HistoryOriginally Posted By ga41: Just saw this and learned of your journey. Prayers and more prayers for you and your loved ones. Thank you |
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FL, USA
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Posted: 3/29/2024 4:32:38 PM EDT
[#17]
Sister in Law succumbed to that last year. Pretty awful stuff. Good luck.
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Posted: 3/30/2024 8:29:12 PM EDT
[#18]
Hope you are doing well..
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Posted: 3/30/2024 8:31:56 PM EDT
[#19]
Quote HistoryOriginally Posted By whiskerz: Hope you are doing well.. Thank you, |
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Posted: 3/31/2024 12:47:00 PM EDT
[#20]
Still praying for you brother.
How's your face healing? I'm hoping you and yours are having a good Easter. |
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Posted: 3/31/2024 3:24:46 PM EDT
[#21]
Quote HistoryOriginally Posted By osprey21: Still praying for you brother. How's your face healing? I'm hoping you and yours are having a good Easter. Thank you. The ironic thing is that I heal well, just everything but my brain that is. We are doing good |
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FL, USA
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Posted: 4/3/2024 4:10:17 PM EDT
[#22]
Updates?
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Posted: 4/3/2024 8:58:03 PM EDT
[#23]
Going down hill
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Posted: 4/3/2024 9:23:34 PM EDT
[Last Edit: HiFlow]
[#24]
This was a tough one to read and another put life in perspective moment for sure. May your soul find peace in the here and now, and in the beyond.
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Posted: 4/3/2024 10:33:32 PM EDT
[#25]
Prayers
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Posted: 4/4/2024 8:14:06 AM EDT
[#26]
Thanks all.
If want to pray for something specific, I have severe spasicity in my muscles and it is painful. The greatest pain is during sleep at night and it is effecting my leg muscles adversely. The meds I am taking are not helping much. |
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Posted: 4/4/2024 9:05:06 AM EDT
[#27]
Quote HistoryOriginally Posted By Banditman: Thanks all. If want to pray for something specific, I have severe spasicity in my muscles and it is painful. The greatest pain is during sleep at night and it is effecting my leg muscles adversely. The meds I am taking are not helping much. Have you considered medical MJ? Its not going to cure your conditions but it will most likely ease some of your pain and suffering and make the days/nights a little more bearable. Im not a Dr. and have no idea how it may react/effect with your condition or other meds but its worth the discussion with your doc, or doing a little personal research. |
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Posted: 4/4/2024 10:14:30 AM EDT
[#28]
Quote HistoryOriginally Posted By Banditman: Going down hill  |
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FL, USA
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Posted: 4/4/2024 11:08:10 AM EDT
[Last Edit: S58DRIVER]
[#29]
Quote HistoryOriginally Posted By HiFlow: Have you considered medical MJ? Its not going to cure your conditions but it will most likely ease some of your pain and suffering and make the days/nights a little more bearable. Im not a Dr. and have no idea how it may react/effect with your condition or other meds but its worth the discussion with your doc, or doing a little personal research. Quote HistoryOriginally Posted By HiFlow: Originally Posted By Banditman: Thanks all. If want to pray for something specific, I have severe spasicity in my muscles and it is painful. The greatest pain is during sleep at night and it is effecting my leg muscles adversely. The meds I am taking are not helping much. Have you considered medical MJ? Its not going to cure your conditions but it will most likely ease some of your pain and suffering and make the days/nights a little more bearable. Im not a Dr. and have no idea how it may react/effect with your condition or other meds but its worth the discussion with your doc, or doing a little personal research. I have suffered with RLS (Restless Leg Syndrome)since I was in college..I am 57 now. When I lay down, it feels like 460 volt cable lines are plugged into my thighs and turned on until about 4am when I finally pass out. It's terrible, I have tried Mirapex as well as as many other meds. They all suck. I was on methadone of all things for 20 yrs. It absolutely worked, but I switched over to Florida's MMJ program as soon as it opened in Nov 2016. I take no other meds and use the mint chocolate bars from Cureleaf or Marshmello Chocolate bars from Vidacann. It's about $8 per day with my senior weed discount lol.. I just work off the bar from 4p to 9p. The chocolate really soaks into your bones for a nice deep high...much better than the gummies or smoking |
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Posted: 4/4/2024 11:20:20 AM EDT
[Last Edit: HiFlow]
[#30]
Quote HistoryOriginally Posted By S58DRIVER: I have suffered with RLS (Restless Leg Syndrome)since I was in college..I am 57 now. When I lay down, it feels like 460 volt cable lines are plugged into my thighs and turned on until about 4am when I finally pass out. It's terrible, I have tried Mirapex as well as as many other meds. They all suck. I was on methadone of all things for 20 yrs. It absolutely worked, but I switched over to Florida's MMJ program as soon as it opened in Nov 2016. I take no other meds and use the mint chocolate bars from Cureleaf or Marshmello Chocolate bars from Vidacann. It's about $8 per day with my senior weed discount lol.. Quote HistoryOriginally Posted By S58DRIVER: Originally Posted By HiFlow: Originally Posted By Banditman: Thanks all. If want to pray for something specific, I have severe spasicity in my muscles and it is painful. The greatest pain is during sleep at night and it is effecting my leg muscles adversely. The meds I am taking are not helping much. Have you considered medical MJ? Its not going to cure your conditions but it will most likely ease some of your pain and suffering and make the days/nights a little more bearable. Im not a Dr. and have no idea how it may react/effect with your condition or other meds but its worth the discussion with your doc, or doing a little personal research. I have suffered with RLS (Restless Leg Syndrome)since I was in college..I am 57 now. When I lay down, it feels like 460 volt cable lines are plugged into my thighs and turned on until about 4am when I finally pass out. It's terrible, I have tried Mirapex as well as as many other meds. They all suck. I was on methadone of all things for 20 yrs. It absolutely worked, but I switched over to Florida's MMJ program as soon as it opened in Nov 2016. I take no other meds and use the mint chocolate bars from Cureleaf or Marshmello Chocolate bars from Vidacann. It's about $8 per day with my senior weed discount lol.. That is awesome! Glad it brings you relief. And in this very same forum we have people calling us names for promoting something that absolutely works miracles for many ailments. Maybe not full cures in all cases, but definitely relief. I suffer from periodic bouts of anxiety, at times it can feel like a heart attack with extreme chest pains, and total loss of concentration. It in the past when I had less responsibilities and a job that absolutely forbids it, a tiny piece the size of a BB when smoked would shut that down and stabilize my mood and allow focus. I am very angry I cannot do this to this day. I cannot get a med card because its still fed listed, and my job is tied to the fed. Absolutely forbidden even though Fl legalized it. Its not worth the risk getting popped on a random drug test and potentially losing everything I have worked for in my life. And thats not even factoring in the felonies if I went the non legal method of med usage. 
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Posted: 4/4/2024 7:44:46 PM EDT
[#31]
Quote HistoryOriginally Posted By HiFlow: Have you considered medical MJ? Its not going to cure your conditions but it will most likely ease some of your pain and suffering and make the days/nights a little more bearable. Im not a Dr. and have no idea how it may react/effect with your condition or other meds but its worth the discussion with your doc, or doing a little personal research. I volunteered for clinical trials for ALS meds and that would not fly. The meds I am taking for spasicity are more powerful than MJ anyway. thanks for the input regardless. |
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Posted: 4/7/2024 11:35:16 PM EDT
[#32]
Stay strong. Keep up the fight.
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Posted: 4/10/2024 4:43:22 PM EDT
[#33]
I'm so sorry you are going through this. I've put you in my prayers.
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Posted: 4/10/2024 5:34:04 PM EDT
[#34]
Quote HistoryOriginally Posted By SGB: I'm so sorry you are going through this. I've put you in my prayers. How have you been doing? So sorry to hear of your wife's passing - I hope your back is healing nicely. |
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Posted: 4/10/2024 6:29:58 PM EDT
[#35]
Quote HistoryOriginally Posted By SGB: I'm so sorry you are going through this. I've put you in my prayers. Thank you |
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FL, USA
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Posted: 4/14/2024 11:05:15 AM EDT
[#36]
Quote HistoryOriginally Posted By Banditman: Thanks all. If want to pray for something specific, I have severe spasicity in my muscles and it is painful. The greatest pain is during sleep at night and it is effecting my leg muscles adversely. The meds I am taking are not helping much. Prayers for healing, peace and for the leg pain to go away. |
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Posted: 4/14/2024 11:34:06 AM EDT
[#37]
Quote HistoryOriginally Posted By Levi24: Prayers for healing, peace and for the leg pain to go away. Quote HistoryOriginally Posted By Levi24: Originally Posted By Banditman: Thanks all. If want to pray for something specific, I have severe spasicity in my muscles and it is painful. The greatest pain is during sleep at night and it is effecting my leg muscles adversely. The meds I am taking are not helping much. Prayers for healing, peace and for the leg pain to go away. Thank you |
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