I went to the neurologist today (Page 7 of 7)
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Another good one for mitochondrial health is TMG ( trimethylglycine) or betaine. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6171430/ ETA - any of the methyl donors help the electron transport chain. Just make sure you get folate and not folic acid , methylcobalamin and not cyanocobalimin... helps keep the homocysteine down ... |
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Originally Posted By 9D1Alpha: I don't believe you need a script. I'll need to check . Quality is an issue . ETA - https://www.amazon.com/dp/B0BNK6KQ19?tag=arfcom00-20 Pharmaceutical grade . Need to be sure of purity . Low dose and check interactions Originally Posted By 9D1Alpha: Originally Posted By Mach: Originally Posted By 9D1Alpha: Originally Posted By Scar811: Please google” Methylene Blue for long covid” Certainly will rescue the mitochondria is there an easy way to get a script? I don't believe you need a script. I'll need to check . Quality is an issue . ETA - https://www.amazon.com/dp/B0BNK6KQ19?tag=arfcom00-20 Pharmaceutical grade . Need to be sure of purity . Low dose and check interactions that looks like it is 50 doses. Thanks, none of the others I looked at had any of those dosing charts. I will read the study reports again and see how long until improvements were seen to figure out if I should try this. |
Mach
Nobody is coming to save us.
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Nobody is coming to save us.
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Just a random FYI - not sure why I'm bothering to mention it at this point: For the better part of a year now, I have, I think, a touch of Phantosmia. I smell smells that aren't there. It's almost always the smell of.....ehhh, let's call it roasted animal feed. A really 'dry' smell. I've heard people mention burnt toast. Mine isn't really burnt toast. Mine is more......maybe roasted soybean hulls or something like that. The closest thing I can compare it to is the cheaper animal feeds we buy - they're dry, non-sweet roasted waste grain byproducts, I think, and the smell I catch a whiff of from time to time is like that, but stronger. Like my head was stuck in the feed bag. *shrug* 
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Originally Posted By arowneragain: Just a random FYI - not sure why I'm bothering to mention it at this point: For the better part of a year now, I have, I think, a touch of Phantosmia. I smell smells that aren't there. It's almost always the smell of.....ehhh, let's call it roasted animal feed. A really 'dry' smell. I've heard people mention burnt toast. Mine isn't really burnt toast. Mine is more......maybe roasted soybean hulls or something like that. The closest thing I can compare it to is the cheaper animal feeds we buy - they're dry, non-sweet roasted waste grain byproducts, I think, and the smell I catch a whiff of from time to time is like that, but stronger. Like my head was stuck in the feed bag. *shrug* I have that. It is fairly common among the post-covid because the receptors got permanently damaged. A smell, real or imagined, gets stuck in your brain and stays there in the background until the next one decides to take over. The whiff of Febreze or whatever it was the seller sprayed in a package I bought off of e-bay lasted for weeks. The strong mothball/chemical BO of an older lady I trained at work for 2 days before she stopped showing up was stuck in my sinuses for months until I got a whiff of the toasted grain smell (like you mention) when I opened a bag of Koi pellets and it took over residence of my brain...thankfully. |
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Originally Posted By HEATSEAKER: I have that. It is fairly common among the post-covid because the receptors got permanently damaged. A smell, real or imagined, gets stuck in your brain and stays there in the background until the next one decides to take over. The whiff of Febreze or whatever it was the seller sprayed in a package I bought off of e-bay lasted for weeks. The strong mothball/chemical BO of an older lady I trained at work for 2 days before she stopped showing up was stuck in my sinuses for months until I got a whiff of the toasted grain smell (like you mention) when I opened a bag of Koi pellets and it took over residence of my brain...thankfully. So I'm not crazy and not the only one?  Mine didn't start immediately. I don't think I noticed it at all for the first 2(?) years post-covid. It's only in this last year. Did I have a second undetected infection? Or am I getting worse? I don't know how to even begin answering those questions. Part of me thinks it's not a phantom smell, part of me thinks it's like my brain takes what should be a wide range of smells and reduce them down to 'roasted grain feed' smell. Like my nose is a computer sending a picture to the printer (my brain's olfactory center) but it spits it out in B&W instead of color.
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I guess I can once again update this: Based on my review of the client's reported symptoms and information provided, the client meets DSM-5 diagnostic criteria for ADHD, predominantly inattention type due to the fact that there are clear symptoms of inattention that impair the client’s functioning across multiple settings-academic, social, home, and work settings. Symptomatology is not better explained by another mental disorder. Teledoc app tomorrow to hopefully get a stimulant rx. |
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Further update: Yep. It's ADHD. It's been ADHD all this time. Apparently there's a growing body of research indicating that, for reasons not yet understood, a lot of people show a development of, or increase in, ADHD symptoms post-covid. I am, apparently, one of them. A low dose of adderall has showed me immediate and significant gains in my ability to function/focus on things. Headache's still there. Not sure what to say about that. But just getting my focus back is huge. |
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I had COVID in 2022. My symptoms include brain fog, pretty bad dizziness, and insomnia. Every time I mention the possibility of Long Covid to any health care givers, none of them follow up with any questions. I went to a sleep specialist for months and all he concentrates on is my damn CPAP machine. He gives me horrible breathing tests with no obvious result. During the 9 months I was under his care, I had pneumonia twice. He accidently caught it the first time with an Xray. The second time I had a temp and high blood sugars and went to urgent care. They encouraged me to pursue Long Covid. Sleep doctor says there is nothing anyone can do for insomnia. I have talked to this sleep doctor, my GP, my diabetes Dr., a neurologist, and a heart doctor some than once about Long Covid. No one will even address the issue or ask any questions. What gives? I am beginning to suspect they do not want to acknowledge the issue. But why? Anything over the counter that works? No, I have not read all the posts on this Covid forum since 2020 about all the options. it just occurred to me last night that none of them pursued the issue. |
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Originally Posted By Skunkhunter: I have talked to this sleep doctor, my GP, my diabetes Dr., a neurologist, and a heart doctor some than once about Long Covid. No one will even address the issue or ask any questions. What gives? I am beginning to suspect they do not want to acknowledge the issue. But why? Anything over the counter that works? No, I have not read all the posts on this Covid forum since 2020 about all the options. it just occurred to me last night that none of them pursued the issue. For reasons that I don't really like, ADHD is pretty much exclusively handled by psychiatrists or psychologists, not neuros or other specialties. I deeply dislike that. But I can't change it. Because of that, well, there just ain't much money in it for those other guys. I am now 3+ weeks into experimenting with ADHD stimulants. Do they work? Yes. The short version is that *ADHD IS THE PROBLEM* at least for me; of that, I am certain, and was certain of it the very first day I took the adderall. The long version is that most people take months to figure out dosage, etc, once they start on ADHD drugs. Looks like I'll be in that same boat. I'm about a week out from my next telehealth appt. Hopefully I get my rx increased then. Is there an OTC ADHD med that works? Ehhh, not really. If I could go back in time to one week after having Covid, I would 100% tell myself to go get dx/ed ADHD immediately at any cost. So I'll tell you the same thing. Go online and do an online assessment for ~$200 and then do a telehealth appt for another $200. If it isn't ADHD you're out $400. If it is, you can start getting life back under control. |
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Originally Posted By arowneragain: For reasons that I don't really like, ADHD is pretty much exclusively handled by psychiatrists or psychologists, not neuros or other specialties. I deeply dislike that. But I can't change it. Because of that, well, there just ain't much money in it for those other guys. I am now 3+ weeks into experimenting with ADHD stimulants. Do they work? Yes. The short version is that *ADHD IS THE PROBLEM* at least for me; of that, I am certain, and was certain of it the very first day I took the adderall. The long version is that most people take months to figure out dosage, etc, once they start on ADHD drugs. Looks like I'll be in that same boat. I'm about a week out from my next telehealth appt. Hopefully I get my rx increased then. Is there an OTC ADHD med that works? Ehhh, not really. If I could go back in time to one week after having Covid, I would 100% tell myself to go get dx/ed ADHD immediately at any cost. So I'll tell you the same thing. Go online and do an online assessment for ~$200 and then do a telehealth appt for another $200. If it isn't ADHD you're out $400. If it is, you can start getting life back under control. I appreciate your response. My GP referred me to a psychiatrist a few months ago, but they never called back. She sent me to this neurologist instead. No luck there. According to the neurologist I am better off than the average 72-year-old man. I probably do have ADHD. It's just that it seems to have gotten worse since I had Covid. My main concern was why no one in the medical field wants to address Long Covid. BTW, I was on Adderall for a while, and it was great. Until it didn't work anymore. |
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Originally Posted By Skunkhunter: BTW, I was on Adderall for a while, and it was great. Until it didn't work anymore. It doesn't work for everyone and apparently it's common that a lower dose will work for a while, then the effectiveness will decrease, and you have to go to a higher dose. That's actually sort of to be expected, and that's exactly how mine is playing out right now. The first week was awesome for me, at least in the afternoons, but the second and third weeks, the effects were moderated a bit. (ETA: I realize that you can only go up so high, safely, of course) I hope to increase the dose and possibly mix it with guanfacine as my BP is really about as high as I care for it to be. Guanfacine and adderall are apparently often prescribed in combo, as the guanfacine will mitgate the stimulant side effects, and possible enhance the good effects. |
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Originally Posted By Mach: shit his last login was 8/14/2025 does anybody know him in real life? |
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