[ARCHIVED THREAD] - I have ALS (Page 1 of 2)
Posted: 11/16/2023 8:15:45 PM EDT
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Not looking for pity. Just an FYI. Was diagnosed in May but was feeling effects of it in 2022. I have lost a lot of function in my hands, have a difficult time walking now. I have a slight difficulty swallowing and can still breath well. I at peace with this but hate what my family will have to go through. About twelve years ago my wife and I started traveling and spending some money on ourselves. Making memories with Family and friends. That was a good move. The point is that there are no guarantees in life and I suggest that if you are able you do the same. I am fortunate that I had a lot of sick time banked and also have good LTD so we are doing good financially. I am trying to keep going as hard as possible to keep making memories not for my sake but for those I leave behind. |
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Quoted: Sorry to hear that Randy. You were always a welcomed participant at all of the gatherings we attended together over the years. Stay strong...live your life. You are correct, nothing is guaranteed. Prayers will be sent. Thank you and I always enjoyed the gatherings and so did members of my Family. |
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The thing I think about the most is our grandchildren. My son has two, a 6 year old girl and a three year old boy. I have made memories with them that at least the 6 year old will remember. Camping and day trips to parks and such. My daughter gave birth to a boy almost 3 months ago. I don't believe I will be able to do the same with him. The two on the outside of the first pic are my son's and the infant is my daughter's. But I feel blessed to have had the time I was given with them. Attached File Attached File Attached File |
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Quoted: I'm not sure what to say, old friend I've always enjoyed seeing you and the family over the years. Wishing you all the best, if there's anything I can do, please don't hesitate to reach out. Thank you You said enough and my family and I enjoyed the time we spent at events with you guys. I was an outsider and always felt welcome and comfortable. |
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Quoted: Thank you You said enough and my family and I enjoyed the time we spent at events with you guys. I was an outsider and always felt welcome and comfortable.  Stay strong my friend.  |
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An update to this 1:00 AM Tuesday I got up to pee and tripped on a rug and went face first into the rim of the tub. I don't know how but I did not lose consciousness. I was bleeding like a stuck hog. I could not get up and wife called 911. They transported me to Poinciana. They did a CT scan and saw that I had a brain bleed. They did not have trauma dept so another ambulance ride to LRMC. I got a 2.5 inch gash on my forehead and a 1 inch one on the bridge of my nose. Crushed both air chambers in my nose and it was bent like a J. The bleeding on the brain stopped and they did surgery on my nose on Thursday. I came home Friday. Before this I could get around the house walking with leg braces. I can no longer do this and have to use a walker now. We are having a wheelchair platform lift installed because going up and down the steps is dangerous. A power wheelchair is next. My wife and kids are taking good care of me and this is a blessing. |
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Quoted: An update to this 1:00 AM Tuesday I got up to pee and tripped on a rug and went face first into the rim of the tub. I don't know how but I did not lose consciousness. I was bleeding like a stuck hog. I could not get up and wife called 911. They transported me to Poinciana. They did a CT scan and saw that I had a brain bleed. They did not have trauma dept so another ambulance ride to LRMC. I got a 2.5 inch gash on my forehead and a 1 inch one on the bridge of my nose. Crushed both air chambers in my nose and it was bent like a J. The bleeding on the brain stopped and they did surgery on my nose on Thursday. I came home Friday. Before this I could get around the house walking with leg braces. I can no longer do this and have to use a walker now. We are having a wheelchair platform lift installed because going up and down the steps is dangerous. A power wheelchair is next. My wife and kids are taking good care of me and this is a blessing. Damn... sorry to hear this. Continued prayers for you and your family. |
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Quoted: An update to this 1:00 AM Tuesday I got up to pee and tripped on a rug and went face first into the rim of the tub. I don't know how but I did not lose consciousness. I was bleeding like a stuck hog. I could not get up and wife called 911. They transported me to Poinciana. They did a CT scan and saw that I had a brain bleed. They did not have trauma dept so another ambulance ride to LRMC. I got a 2.5 inch gash on my forehead and a 1 inch one on the bridge of my nose. Crushed both air chambers in my nose and it was bent like a J. The bleeding on the brain stopped and they did surgery on my nose on Thursday. I came home Friday. Before this I could get around the house walking with leg braces. I can no longer do this and have to use a walker now. We are having a wheelchair platform lift installed because going up and down the steps is dangerous. A power wheelchair is next. My wife and kids are taking good care of me and this is a blessing. Damn...  As always, my thoughts and prayers to you and the family. |
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Quoted: An update to this 1:00 AM Tuesday I got up to pee and tripped on a rug and went face first into the rim of the tub. I don't know how but I did not lose consciousness. I was bleeding like a stuck hog. I could not get up and wife called 911. They transported me to Poinciana. They did a CT scan and saw that I had a brain bleed. They did not have trauma dept so another ambulance ride to LRMC. I got a 2.5 inch gash on my forehead and a 1 inch one on the bridge of my nose. Crushed both air chambers in my nose and it was bent like a J. The bleeding on the brain stopped and they did surgery on my nose on Thursday. I came home Friday. Before this I could get around the house walking with leg braces. I can no longer do this and have to use a walker now. We are having a wheelchair platform lift installed because going up and down the steps is dangerous. A power wheelchair is next. My wife and kids are taking good care of me and this is a blessing.
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| I am glad to hear you and your family are doing well and they are watching for/helping you. That's very important as we all know. We never know where/how are lives will lead us but in all seriousness, I pray you may find the Lord if you don't have Him already. He offers/gives eternal peace. I know He has blessed and been with my family with our health issues over the years. As I get older, I find myself needing Him more and more, as we are just flowers that will fade away but He remains forever, 1 Peter 1:24-25. I will pray for you and your family as well. |