My Dad had Idiopathic Pulmonary Fibrosis. Diagnosed at age 71, died at 76, 4 years ago. Up until the point he was first diagnosed he had been walking 4-7 miles a day several days a week. Hadn't smoked since he was 30. Had he been under 70 he would have been eligible for a lung transplant, his heart was better thaan most 40 year olds, the Docs said his heart power gave him an extra year. The physical he had before being diagnosed, he literally blew up the lung capacity measuring machine, even after the PF had set in. They figure he had it for 2 years before he finally showed some impairment because he ws in such good shape.
Literally had not taken any sick days except for his gall bladder problems since his motor officer accident in 51 when he spent 2 weeks in a coma.
2-7 years unfortunately about right, Jerry Lewis, I believe has it but he is almost living on steroids, which is why he is puffed up like a balloon.
Idiopathic PF means they don't know what caused it, no history of asbestos exposure, etc. He did live in Los Angeles all his live, but if air pollution caused it why aren't more people getting it?
To be blunt, most die from heart failure before they get to the inevitable end result of the lungs being unable to respirate enough air to live on.
My Dad was up and walking the day before he passed away when my son and I were up adding a frame to his chair so it was easier to get up and down. We also hadn't even unpacked his walker. He came out and was helping us in the shop while we were cutting the wood on his saw. Thankfully, when he went, it was a massive heart attack, and he was gone before the Paramedics arrived 3 minutes after the call went in. The parameds were shocked because he went so fast, he used to take my kids to visit the Fire Station, so they knew him.
You need to make some decisions NOW. Travel if you want, while you can. We lost that chance to take a trip visiting several train museums with him and my kids that we had always wanted to but never got around to it and then he couldn't fly and the roads went over 8,000 foot passes in the Sierras.
Decide what you want to do and do it. Like it or not, you are on a timetable. Don't get morbid, that doesn't help anybody, but be realistic. We decided that we would give no resusitate orders. Frankly, it wouldn't add any more quality time and be attached to respirators forcing oxygen into lungs that weren't working. All his family was local and we were spending a lot of time together. My family and kids the night before and my brother and his kids that morning, as it happened.