Sitting in the hospital waiting room as my wife undergoes brain surgery - Page 2

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[ARCHIVED THREAD] - Sitting in the hospital waiting room as my wife undergoes brain surgery (Page 2 of 5)

Posted: 9/25/2023 11:07:12 AM EST

[#1]

Prayers

Posted: 9/25/2023 11:08:57 AM EST

[#2]

Oh Lord! Prayers sent for you and your wife.

Hang in there! Let us know how it goes.

Posted: 9/25/2023 11:09:08 AM EST

[#3]

Prayers sent.

I know what it’s like trying to find a doctor that will listen, jumping through the hoops, to only end in a major surgery, watching your wife being wheeled away to the OR. Hang in there, OP.

Posted: 9/25/2023 11:10:58 AM EST

[#4]

Prayers for you and your wife

I was in same situation a few years ago for my child, The mass doubled in a week. Today that child is an accountant with a masters and a division 1 athlete. while taking daily meds.
Neurosurgeons perform these regularly. it is somewhat common. The cortisol concern is still there today though. my child carries a shot with them Just in case and wears a medical id badge, just in case.

Posted: 9/25/2023 11:11:25 AM EST

[#5]

Prayers sent for full and speedy recovery.

Posted: 9/25/2023 11:12:04 AM EST

[#6]

Quote History

Quoted:
Sending prayers for a successful surgery and healing.

View Quote

This. I hope the surgery is successful and OP's wife makes a full successful recovery.

I'll be getting married next year to a wonderful woman who is amazing and is amazing to me in every way. Topics like this make me think in a way I never have before. It scares me to think about the possibility that she may have something like this happen some day. I pray we will both be healthy and have a long, healthy life together.

And I hope the same for OP. Going through all of those things and being a good husband shows through. Stay strong for your wife and family. Please come back with good news.

Posted: 9/25/2023 11:13:37 AM EST

[#7]

Best wishes for a successful surgery and recovery.

Posted: 9/25/2023 11:17:57 AM EST

[#8]

Prayers for a successful surgery and recovery.

Posted: 9/25/2023 11:18:54 AM EST

[#9]

Prayers sent

Posted: 9/25/2023 11:24:12 AM EST

[#10]

Best of luck to your wife and your family OP, we will be praying for you.

Posted: 9/25/2023 11:31:13 AM EST

[#11]

Sending my very best wishes to you and your wife, OP

Hoping for the very best possible outcome

Posted: 9/25/2023 11:36:22 AM EST

[#12]

May the Good Lord guide the hands of her surgeons and heal her, and may He watch over you both

Posted: 9/25/2023 11:39:17 AM EST

[#13]

Praying for her and you!

Posted: 9/25/2023 11:40:40 AM EST

[#14]

Prayers sent.

Posted: 9/25/2023 11:42:57 AM EST

[#15]

Stay strong brother.

You got this.

Posted: 9/25/2023 11:46:25 AM EST

[#16]

Prayers

Posted: 9/25/2023 11:52:24 AM EST

[#17]

Ok, first step done. She's out of surgery and on her way to the ICU. I'll be heading up shortly, but won't be seeing her for probably 30+ min more

Posted: 9/25/2023 11:53:06 AM EST

[#18]

Good luck.

Posted: 9/25/2023 11:57:11 AM EST

[#19]

Many ????????????’s for your wife!

Posted: 9/25/2023 11:57:42 AM EST

[#20]

Hope everything goes well for your wife and those who love her.

Posted: 9/25/2023 11:58:21 AM EST

[#21]

Good luck OP

Posted: 9/25/2023 11:59:26 AM EST

[#22]

Quote History

Quoted:
Sending prayers for a successful surgery and healing.

View Quote

Yes prayers

Posted: 9/25/2023 12:02:43 PM EST

[#23]

Sending out prayers for you and the sugrical staff working on your wife. God bless.

Edit spelling

Posted: 9/25/2023 12:04:29 PM EST

[#24]

My 15 year old son had brain surgery in October of last year. Recovery isn't quick but it does get better each day. I wish your wife a speedy recovery and will keep you both in my thoughts.

Posted: 9/25/2023 12:18:36 PM EST

[#25]

Quoted:
They just wheeled my wife away.

This has been a long time coming.

Shortly after we got married about 15 years ago, her health started to fluctuate. Insomnia. Panic attacks. Weight issues started even though she cut out sugar and most carbs years ago. Liver problems. We miscarried, a lot of times, before our daughter made it through. After, though, she was a full-blown diabetic.

She journaled all of her food, stuck with the meds and programs the doctor put her on. Things only got worse. Doctor started to act like she must be lying, eating like shit, etc. I watched as she started to have blood sugar spikes even after a fully keto meal.

Finally did some research on our own. Symptoms were a match for Cushing's. Doctor was skeptical at first, but ordered some tests. Came back positive, which had him suddenly very worried and eager to get her to a specialist. Finding an endocrinologist was like pulling teeth - most basically hang up once they hear a patient is diabetic, since they assume that's the whole issue.

Finally found one. Two more rounds of tests and an MRI. Confirmed it as Cushing's disease, rather than Cushing's syndrome - meaning there's a 10mm mass on her pituitary pumping out ACTH, telling her adrenals to pump cortisol night and day. Her last levels were at 7 times the normal human "high" cortisol level.

So right about now they're putting her under, prepping to go up her nose and cut away this thing on her brain. If all goes well, her cortisol will crash in a few hours... which will likely nearly kill (but they have to verify it hits zero before they put her on drugs to make sure they got everything). Then it's going to be years of monitoring and hopefully weaning her off of the drugs as her pituitary slowly wakes back up and makes ACTH on its own and normal levels.

If things don't go well... It's not going to be pretty. I don't get a lot of PTO at my current school job (two days a year, to be precise, on top of holidays, school breaks and summer). But I'll burn that bridge when I come to it.

View Quote

Damn.
I thought it sucked when one of our dogs had cushings. FML that sounds aweful. Prayers for a successful outcome, even though a successful outcome may not look be 100% recovery.

Posted: 9/25/2023 12:21:06 PM EST

[#26]

Prayers sent.

Posted: 9/25/2023 12:22:20 PM EST

[#27]

I had a brain surgery, 10 hours long, about 13 years ago. It took me weeks to get back to normal, so be patient, and take great care of your wife. Prayers for her, for you and your family.

Posted: 9/25/2023 12:23:29 PM EST

[#28]

Prayers sent!

Posted: 9/25/2023 12:25:32 PM EST

[#29]

Prayers for healing, brother.

Posted: 9/25/2023 12:28:56 PM EST

[#30]

Sending prayers. Take care.

Posted: 9/25/2023 12:34:54 PM EST

[#31]

I hope everything works out as planned! Keep chin up!!

Posted: 9/25/2023 12:38:35 PM EST

[#32]

Many prayers are on the way for all of you and especially your wife.

Posted: 9/25/2023 12:46:16 PM EST

[#33]

Prayers sent OP

Posted: 9/25/2023 1:05:04 PM EST

[#34]

I wish you, your wife and daughter all the best.

Posted: 9/25/2023 1:07:36 PM EST

[#35]

praying!

Posted: 9/25/2023 1:07:58 PM EST

[#36]

You guys got this !

Posted: 9/25/2023 1:09:03 PM EST

[#37]

@Vanagandr

PM me. I'm going through the same thing. Happy to provide some insight.

Posted: 9/25/2023 1:11:41 PM EST

[#38]

Stay strong OP! Your Arfcom brethren are pulling for you guys.

Posted: 9/25/2023 1:43:49 PM EST

[#39]

prayers sent

Posted: 9/25/2023 1:54:13 PM EST

[#40]

She and the rest of your family will be in my prayers.

Posted: 9/25/2023 1:56:49 PM EST

[#41]

What a roller coaster. I hope the best for you both.

Posted: 9/25/2023 2:14:58 PM EST

[#42]

Just traded places with my in-laws so I can grab something at the cafeteria. My wife is still pretty out of it, and they're watching her cortisol level

Posted: 9/25/2023 2:16:18 PM EST

[#43]

Best wishes and prayers sent for your wife's recovery.

Posted: 9/25/2023 2:19:50 PM EST

[#44]

Holy smokes OP. I literally was in an Uber with a Greek guy who told me that over in Greece to do the same surgery they want to cut into the brain. They don’t even know how to go of the nose.

I just had heart surgery for eight hours on the table Friday at Cleveland clinic in Cleveland. I hope all goes well with your wife.

Posted: 9/25/2023 2:21:25 PM EST

[#45]

I have a very good friend who had all of the symptoms you described and was eventually diagnosed with Cushings. She underwent surgery, and while there were some very minor complications, made an excellent recovery and looks, acts, and feels 20-years younger. She and her husband had to advocate hard for the care and treatment she needed, but it saved her and she's doing exceptionally. Prayers for you and your wife.

Posted: 9/25/2023 2:22:40 PM EST

[#46]

Quote History

Quoted:
Sending prayers for a successful surgery and healing.

View Quote

I had brain surgery in 2010. After effects for 4 months and perfectly fine since. Hang in there OP, prayers sent.

Posted: 9/25/2023 2:28:14 PM EST

[#47]

Glad she made it though the surgery. Praying that the rest goes just as well.

Posted: 9/25/2023 2:30:37 PM EST

[#48]

Prayers sent

Posted: 9/25/2023 2:33:00 PM EST

[#49]

Prayers for both of you and the doctors

Posted: 9/25/2023 2:34:33 PM EST

[#50]

Prayers going up!

[ARCHIVED THREAD] - Sitting in the hospital waiting room as my wife undergoes brain surgery (Page 2 of 5)

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