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Posted: 9/21/2022 10:00:21 PM EDT
[Last Edit: Elijah1]
Wesley is sick. Doctors don't know what's wrong.   He's losing 2 to 3 pounds a week.  WBC count is low, RBC count is low.  Negative for diabetes.  He wasn't a heavy kid to begin with.  He's 13 and obviously scared himself.   I'm losing my goddamn mind.   I've had more stress this year than all other years combined, and the prospects of having a really sick kid scares the hell out of me.  So if you're the praying type, please keep Wes in your prayers.  If you're the good vibes type, send them his way too.  Thanks ARF family.


Update-ish:  Wes has lost another 4 pounds since Tuesday.  I moved the scale all over the damned room trying to get it to weigh a more accurate weight.  Doctor is ordering a full body scan to look for masses.  We're going to the best oncology/hematology doc in the state.

Here's a couple of pictures of Wes so you know who you're praying for.

Update:  he's celiac disease negative so the doctors are now doing a chest X-ray, a cell turnover test, and an inflammation test of some sorts.  


Attachment Attached File


Attachment Attached File


Update 9-29-22: The cell turnover test was on the high side of normal.   The test for inflammation was normal.  Chest X-ray was also inconclusive.  

So the oncology/hematology doc wants us to track the everliving shit out of his food consumption.   Have him wear a smart watch to track activity in My Fitness Pal and continue to weigh him every 2 days.   He wants to be absolutely certain that it’s not a calorie deficit problem before doing more invasive tests.
Link Posted: 9/21/2022 10:02:47 PM EDT
[#1]
good vibes sent to you and wesley.
Link Posted: 9/21/2022 10:03:29 PM EDT
[#2]
Prayers for Wes and all of you.
Link Posted: 9/21/2022 10:03:32 PM EDT
[#3]
You and yours are in my prayers tonight
Link Posted: 9/21/2022 10:03:38 PM EDT
[#4]
Consider it done
Link Posted: 9/21/2022 10:04:01 PM EDT
[#5]
Praying for you and yours brother
Link Posted: 9/21/2022 10:04:26 PM EDT
[#6]
Sent
Link Posted: 9/21/2022 10:04:54 PM EDT
[#7]
Might be worth braving Chicago if this don’t get figured out soon.
Link Posted: 9/21/2022 10:05:56 PM EDT
[Last Edit: astrocreep96] [#8]
I hope he gets better, Elijah.  Good vibes your son's way.
Link Posted: 9/21/2022 10:06:24 PM EDT
[#9]
Prayers sent for Wes, you and the family.  
Link Posted: 9/21/2022 10:06:42 PM EDT
[Last Edit: SAE] [#10]
Prayers for a breakthrough concerning treatment for Wes.
Link Posted: 9/21/2022 10:07:04 PM EDT
[#11]
Prayers for your family.
Link Posted: 9/21/2022 10:07:04 PM EDT
[#12]
Prayers for Wes!
Link Posted: 9/21/2022 10:07:28 PM EDT
[#13]
Link Posted: 9/21/2022 10:07:52 PM EDT
[#14]
You guys are in my prayers.
Link Posted: 9/21/2022 10:08:58 PM EDT
[#15]
Done
Link Posted: 9/21/2022 10:09:20 PM EDT
[#16]
Prayers OP.
Stay strong for your boy.
Link Posted: 9/21/2022 10:10:16 PM EDT
[#17]
We’ll be praying for Wes nightly
Link Posted: 9/21/2022 10:10:20 PM EDT
[#18]
Done!
Link Posted: 9/21/2022 10:10:48 PM EDT
[#19]
Done, it’s never good when our kids are hurting.
Link Posted: 9/21/2022 10:11:10 PM EDT
[#20]
Prayers that God would impart his wisdom on your sons doctors
Link Posted: 9/21/2022 10:11:24 PM EDT
[#21]
I hope they figure out what's going on.
Link Posted: 9/21/2022 10:11:57 PM EDT
[#22]
Prayer said for Wes and your family.
Link Posted: 9/21/2022 10:12:10 PM EDT
[#23]
Prayers! Stay strong and let us know if we can help in any other way.
Link Posted: 9/21/2022 10:12:17 PM EDT
[#24]
Done
Link Posted: 9/21/2022 10:12:25 PM EDT
[#25]
Done
Link Posted: 9/21/2022 10:12:57 PM EDT
[#26]
Thanks everyone he's currently 5'7 and weighs 113.  He doesn't have far to go before he's in scary territory.  Eats everything he can get his hands on.
Link Posted: 9/21/2022 10:14:26 PM EDT
[#27]
My family will be praying for yours and your son.
Link Posted: 9/21/2022 10:14:35 PM EDT
[#28]
Prayers for your son.
Link Posted: 9/21/2022 10:14:48 PM EDT
[#29]
Discussion ForumsJump to Quoted PostQuote History
Originally Posted By CarbideCandy:
Might be worth braving Chicago if this don’t get figured out soon.
View Quote


That thought has crossed my mind. Or the children's hospital in Indianapolis.  I trust the competency of his doctor.  I've known him for 17 years.  He's a smart man and doesn't get excited too easily.  He's excited
Link Posted: 9/21/2022 10:14:51 PM EDT
[#30]
In Jesus’ name brother.
Link Posted: 9/21/2022 10:14:53 PM EDT
[#31]
Prayers sent!
Link Posted: 9/21/2022 10:15:20 PM EDT
[#32]
Sent.  I hope you. Get a speedy diagnosis and he recovers quickly.
Link Posted: 9/21/2022 10:17:25 PM EDT
[#33]
Praying for Wes. Been there as a parent. I know you feel helpless.

Please keep us posted on his "improvement". We are expecting good things.
Link Posted: 9/21/2022 10:17:43 PM EDT
[#34]
had a daughter that dealt with serious health issues at that age. it was the toughest time of my life. good vibes and thoughts sent your way. i hope they can get on top of it.
Link Posted: 9/21/2022 10:22:15 PM EDT
[#35]
Prayers sent for you and Wesley, brother.

I feel your pain. Tomorrow my wife, son and I head to a large Children’s Hospital in KC so my son can get heart surgery. He’s 13.
We’re all wearing brave faces, but I can tell everyone is stressed.

You might be in a worse place though, where we were several months ago. Not knowing…

God Bless you all. May the Doctors have knowledge and wisdom, and find the answer to bring your son to health. May that knowledge bring healing to your son, and peace to you.

God speed.
Link Posted: 9/21/2022 10:23:47 PM EDT
[#36]
Praying for your boy, you and his docs.
Link Posted: 9/21/2022 10:25:20 PM EDT
[#37]
prayers
Link Posted: 9/21/2022 10:28:02 PM EDT
[#38]
You got it- cannot imagine.
Link Posted: 9/21/2022 10:28:49 PM EDT
[#39]
Jesus, we lift up Wesley to You.  We know that You know us intimately.  You knitted us together in the womb
You know each and every hair on our head.
Please be with this young man and his family and give them comfort.  We ask for the Holy Spirit to descend upon this family and give a peace that has never been felt like this before for this family.
We ask for wisdom from the doctors that they may not leave any stones unturned to find out what is going on.
We thank you for medical wisdom and pray that the doctors treat Wesley as their own.
We ask for miraculous healing that only you can provide.
We pray this all in Jesus' name.
Amen
Link Posted: 9/21/2022 10:35:56 PM EDT
[#40]
Prayers sent for him and your family.  I was the middle son and it's tough enough just being that... having this is a whole new level of stress.

May the grace of god be upon him and your family.

Prayers sent.
Link Posted: 9/21/2022 10:39:24 PM EDT
[#41]
prayers inbound

Link Posted: 9/21/2022 10:42:04 PM EDT
[#42]
Prayers out for your little man..
Link Posted: 9/21/2022 10:42:53 PM EDT
[#43]
Prayers sent.
Link Posted: 9/21/2022 10:44:03 PM EDT
[#44]
Link Posted: 9/21/2022 10:44:33 PM EDT
[#45]
Prayers sent
Link Posted: 9/21/2022 10:46:04 PM EDT
[#46]
Prayers sent
Link Posted: 9/21/2022 10:46:12 PM EDT
[#47]
Prayers inbound.
Link Posted: 9/21/2022 10:49:06 PM EDT
[#48]
Thoughts and prayers.

Get him to a Children’s Hospital affiliated with St Jude’s if you don’t get the answers you need.
Link Posted: 9/21/2022 10:53:33 PM EDT
[#49]
You got it.  Pray ya'll get him figured out before too long!
Link Posted: 9/21/2022 10:54:53 PM EDT
[#50]
Prayers for you and yours
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