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Link Posted: 11/18/2023 4:01:48 PM EST
Bump and best wishes.
Link Posted: 11/26/2023 7:56:26 PM EST
Eloise had eye surgery last week, they did a tarsorrhaphy. This was likely the hardest call we had to make to date. The only thing she can really do is see and hear. We didnt know how much this would close her eyes, but it was the right thing to do. They stitched the outside 5mm of her eyes closed. She can still see, but her peripheral vision is just about gone. She hasn't blinked yet, and may never blink. She even sleeps with here eyes partly opened. She was getting eye drops on the even hours and gel on the odd hours. After the surgery, its just eye drops every 4 hours.

It has been crazy! It feels like its a mad rush to get everything ready for her to be home. The second I think everything is set, well there is something else we need for her, that she needs or that her nurse will need. Her room is very furnished thanks to everyone that has donated. Her nurses are very happy with how we have the room set up, the medical supply company said we are the most prepared people they have seen in a long time.

She comes home on the 28th!!!
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items I have used the funds for
2nd mattress pad, needed to elevate her so its easier to work on her
mini fridge for the nurses
tv for the nurses
2 cameras for her room, did a 360 degree camera and a 102 degree camera
new NVR for camera system, we maxed out the number of channels we had
extra hard drive for camera system, we are recording 24/7 in her room and over the drive way
Paid off all her bills
surge protectors
Outlet in the house for the Generator
New deadbolt with PIN keys for the nurse staff. We can see when they use their code, we have it programed to only work for their shifts.
Link Posted: 11/27/2023 12:34:34 PM EST
Thanks for the update

Her room looks great.  What a blessing you are for her.  Know that and understand that you were born for this.  She was as well.

I know it's frustrating anticipating coming home and there are delays and delays.  It sucks.  No need to rush things though--that is a bit of pride and selfishness creeping in.  She will get home in time.

We all have experienced this, so it's not a knock on you.  It's a "check" and you'll experience and recognize this from here on out.  

Bless her and your whole family.  We are all pulling for y'all.
Link Posted: 11/27/2023 1:51:02 PM EST
Donated, and BUMP!
Link Posted: 11/28/2023 11:14:50 PM EST
Thanks for the update!  You are doing amazing.  Baby Eloise is in good hands.

Btw I was looking at things to monitor a baby's breathing.  I ended up with a hand me down Owlet which is just a pulse oximeter sock.  I'm not sure what monitoring Eloise will have but if she doesn't need anything you could get an owlet for peace of mind.  

They also make cameras that use processing power to figure out if baby is breathing or not.  Might be a good backup to have.
Link Posted: 11/29/2023 9:44:23 AM EST
[Last Edit: 2000Z3M] [#6]
We are home!!!!

Hospital has a new policy that changed right before we left. We had to do a 24hr stay with zero nurse support. We were told at 4pm on the 27th. Less than 19hr before discharge. My wife woke up at 7am on the 27th, didnt get to sleep until 11pm on the 28th. We left the hospital at about 2pm on the 28th after 131 days.

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Link Posted: 11/29/2023 10:32:31 AM EST
Big step.  Congrats!!!
Link Posted: 11/29/2023 1:22:10 PM EST
Discussion ForumsJump to Quoted PostQuote History
Originally Posted By flyhack72:
Big step.  Congrats!!!
View Quote

Link Posted: 11/29/2023 2:29:28 PM EST
Ain't gonna lie. I have shed a few happy dad tears for you.

You had life before and now life with her. It'll be hard, but cherish it all

Best wishes
Link Posted: 11/29/2023 5:20:06 PM EST
Glad your family is finally together at home.
Link Posted: 11/29/2023 8:25:13 PM EST
$100 sent.
Link Posted: 11/29/2023 10:03:59 PM EST
God bless you all
Link Posted: Yesterday 9:34:11 AM EST
Thanks for the update.  Still thinking about you guys and praying for you and Eloise.
Link Posted: Yesterday 8:45:31 PM EST
Eloise is blessed to have you all as her family.
Praying for all of you.
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