Eloise had eye surgery last week, they did a tarsorrhaphy. This was likely the hardest call we had to make to date. The only thing she can really do is see and hear. We didnt know how much this would close her eyes, but it was the right thing to do. They stitched the outside 5mm of her eyes closed. She can still see, but her peripheral vision is just about gone. She hasn't blinked yet, and may never blink. She even sleeps with here eyes partly opened. She was getting eye drops on the even hours and gel on the odd hours. After the surgery, its just eye drops every 4 hours.
It has been crazy! It feels like its a mad rush to get everything ready for her to be home. The second I think everything is set, well there is something else we need for her, that she needs or that her nurse will need. Her room is very furnished thanks to everyone that has donated. Her nurses are very happy with how we have the room set up, the medical supply company said we are the most prepared people they have seen in a long time.
She comes home on the 28th!!!
items I have used the funds for
2nd mattress pad, needed to elevate her so its easier to work on her
mini fridge for the nurses
tv for the nurses
2 cameras for her room, did a 360 degree camera and a 102 degree camera
new NVR for camera system, we maxed out the number of channels we had
extra hard drive for camera system, we are recording 24/7 in her room and over the drive way
Paid off all her bills
Outlet in the house for the Generator
New deadbolt with PIN keys for the nurse staff. We can see when they use their code, we have it programed to only work for their shifts.
Thanks for the update
Her room looks great. What a blessing you are for her. Know that and understand that you were born for this. She was as well.
I know it's frustrating anticipating coming home and there are delays and delays. It sucks. No need to rush things though--that is a bit of pride and selfishness creeping in. She will get home in time.
We all have experienced this, so it's not a knock on you. It's a "check" and you'll experience and recognize this from here on out.
Bless her and your whole family. We are all pulling for y'all.
Thanks for the update! You are doing amazing. Baby Eloise is in good hands.
Btw I was looking at things to monitor a baby's breathing. I ended up with a hand me down Owlet which is just a pulse oximeter sock. I'm not sure what monitoring Eloise will have but if she doesn't need anything you could get an owlet for peace of mind.
They also make cameras that use processing power to figure out if baby is breathing or not. Might be a good backup to have.
We are home!!!!
Hospital has a new policy that changed right before we left. We had to do a 24hr stay with zero nurse support. We were told at 4pm on the 27th. Less than 19hr before discharge. My wife woke up at 7am on the 27th, didnt get to sleep until 11pm on the 28th. We left the hospital at about 2pm on the 28th after 131 days.
Ain't gonna lie. I have shed a few happy dad tears for you.
You had life before and now life with her. It'll be hard, but cherish it all
Thanks for the update. Still thinking about you guys and praying for you and Eloise.
Eloise is blessed to have you all as her family.
Praying for all of you.
Excellent news.......may the Good Lord continue to bless and keep you all
Excellent news, congrats! Prayers for Eloise and your family...
Congratulations! Big brother has an awesome shirt. Tell him to keep up the good work!
Merry Christmas and prayers for your family and daughter.
Been home about 4 weeks now i think, its been a blur. Wife came down with covid, had some nurses call out because of that. I am pulling 6am to 6pm shifts as dad/nurse right now. I am fighting a cold too, took 4 covid test and neg on all of them.
We dont have a nurse from 6am on the 24th to 6pm on the 25th. If the wife still has covid, ill be doing a 36hr shift and christmas will be the 26th or 27th.
I was going to say take it one day at a time. But you're measuring in hours. Hang in there and prayers for health and recovery.
Thank you all for the warm christmas wishes!!!
Wife is better now, still popping hot. I ended up popping hot for covid too. We ended up flying my mom into town to help out.
Merry Christmas to you and your family. Sounds like it was rough and I hope you're able to get some rest soon.
Hats off to your family for fighting so hard for your baby girl.
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