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Posted: 5/9/2017 9:08:27 PM EDT
Feel like I got kicked in the nuts today. Have known deep down for a while I guess, kept telling myself he was just a bit behind. He isn't severe, not violent. He turns 3 in a couple weeks, at about an 18 month level.
Explains the insomnia, super picky eating and some other stuff like not yet talking. I now have things running through my head like will he ever be able to be independent and such. Kind of throws a lot if stuff in the air with what we are doing here with the homesteading and preps and everything. Curious to hear how others in this boat are planning ahead. |
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Sorry to hear that OP. I spent the afternoon with my autistic nephew.
Most research says noninflammatory keto diet is best for all things brain this so we started prepping in that direction for all the family with brain issues. I like the amen clinics research. |
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I was in a play with an autistic 19 y.o.
He is whip smart, has a great sense of humor. And he is a successful college student. I thought he was just a nice young man, when his Mom told me of his Autism. It made me feel better, knowing that it can be lived with. Keep your chin up OP ! |
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I'm sure it is a kick in the gut. You've heard some scary stuff, I'm sure. Even on this forum, "autism" is thrown around sometimes (not always) as a slur. The olden days understanding of autism is tied to something now called classic Kanner autism. And only severe cases of it, actually.
There's a lot to learn; and understanding of autism -- and how much variation exists outside the neurotypical community -- is changing rapidly. Support groups exist, and you want to get the right one. You can also check out forums and interact with older autists, some of whom you'd probably never guess were autistic, especially if you are curious about how life is for an autistic person. It may actually relieve some worry, reading the stories and challenges. But there's a wide range. Some autistic people never really mainstream; others are highly compensated professionals. This forum has many users: http://wrongplanet.net/ I like this one better: https://www.aspiescentral.com/ Something local to you: https://www.ausm.org/ And I dislike Autism Speaks intensely. I am more of a neurodiversity activist, and their approach -- feels like rich white people trying to "fix" their children -- turns me off. Bottom line, Dad: You got this. Your son is going to think and interact in ways that can be different from what you're used to. Sometimes you'll feel challenged, and sometimes you may just stare in wonder at the valid (but maybe "outside the box") perspective he has on things. Best wishes. Life is a wild ride, and none of us get more than we can handle. Your son just has a different skills punchlist than you. |
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5-yo daughter is mildly autistic. However, she has almost caught her peers thanks to early interventions - speech, ABA, OT. Work to get those services in place now.
Who did the diagnosis? Are they connecting you to your state's special need services? PM is I can help! |
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They caught it early, that's good. They can do a lot these days with regards to treatment.
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Never give up hope, my oldest daughter is high functioning autistic. We caught it about the same time, 3 years old. We did everything we could to keep her out of the special ed class. Now she is about to turn 18 is a junior in high school with a 3.5 gpa. Still is a bit socially awkward, but improving all the time. Get him on something to help him sleep learn basic sign language and teach it to him. When he has a melt down and wants something promise him whatever it is he wants to calm him down. He won't remember after it's over anyway.
Good luck and never give up! |
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Sorry OP.
As you probably have read and/or been told by your son's Pediatrician, autism is a spectrum. Hopefully he's on the high functioning aspect of the spectrum. |
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Sorry OP. As you probably have read and/or been told by your son's Pediatrician, autism is a spectrum. Hopefully he's on the high functioning aspect of the spectrum. View Quote From what I have read so far this evening, he is on the "better" end of the spectrum, certainly could have been worse. He is NOT regressive, so that is a major plus. |
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Our 3 year old was autistic too but we went hard core on a gluten free, milk free diet (you REALLY have to be careful... McDonald's fries have milk product....).
The symptoms got WORSE for about 3 weeks and then slowly cleared up. He's now highly functioning teenager who would be classified as a mild case of Asbergers. He's got a phenomenal memory for visual and auditory things but he's a bit socially awkward and misses small non-verbal cues. But he's getting a lot better with coaching. Google leaky gut syndrome. Basically kids get drunk on wheat or milk products - that's why they stime and can't seem to learn anything because their metabolism turns normal food into an intoxicant. Putting them on a permanent diet helps tremendously. |
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The symptoms got WORSE for about 3 weeks and then slowly cleared up. He's now highly functioning teenager who would be classified as a mild case of Asbergers. He's got a phenomenal memory for visual and auditory things but he's a bit socially awkward and misses small non-verbal cues. But he's getting a lot better with coaching. View Quote ROCK6 |
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Feel like I got kicked in the nuts today. Have known deep down for a while I guess, kept telling myself he was just a bit behind. He isn't severe, not violent. He turns 3 in a couple weeks, at about an 18 month level. Explains the insomnia, super picky eating and some other stuff like not yet talking. I now have things running through my head like will he ever be able to be independent and such. Kind of throws a lot if stuff in the air with what we are doing here with the homesteading and preps and everything. Curious to hear how others in this boat are planning ahead. View Quote Get him into "school" asap. Indiana has special pre-school "therapy" for special needs kids. My nephew is autistic, his dad is too but his dad refuses to be tested, my SIL took my nephew to be tested against the will of his father and it was the best thing she ever did. She got him all the help they could get (he was approximately the same age as yours) and he is a relatively normal 7 year old now. The therapies that they can do to break habits and educate them in alternative ways really helped him. He is still a picky eater and he still exhibits the signs very subtly if you watch for them, but for all practical purposes he is a normal child. Get involved with your local autism support group, they will know the resources and the ways to navigate them. Just about every community has autism support groups now. |
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Op as a parent it is a hard to initially process. I know I have a almost 7 year old and a 24 year old with it. The 24 year successfully graduated high school, doing regular classes and now lives overseas with her husband, and doing well. The seven year old has his moments, but he is extreme intelligent. He gets high marks in math, able to do 2 or 3 levels above himself and is a Lego master. He is also a very accurate shot with a Nerf of .22. He is our only boy and a delight to have, but like you mentioned there is some late nights with him. There is quite a bit of information out there, but our biggest help was talking to the Autism Center in Columbia, MO. If you IM me I will get the information from the better half, if you want it.
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My oldest daughter is autistic and it was a very tough road to go down, but she is now 22 and leads a fairly normal life. In our case we didnt really know what was happening with her. She did not walk until after 1 year and I think the first time we knew we needed help was when we sat her in the grass and she cried. She had severe tactile issues and the grass or even food like mashed potatoes she just could not deal with.
We got her into classes to deal with the tactile issues at 3 years or age and they also worked with her for next few years on speech therapy. I will say my ex wife threw herself into trying to get her on a semi level playing field so that she could be self sufficient. Over the years we dealt with a ton of issues and ran to children's hospitals and had DNA work done, but no answers other then a general she is autistic. It was tough on me I wanted a normal kid! It was crushing at times because she struggled at with even simple things . She also could not deal with loud noises and large crowds , so you learn to move her away. In the end she graduated HS , is working a job, and has had a very nice BF for the last two years. She is a happy kid and most people would never know there was an issue unless you really looked at her an watched how she reacts to things. Good luck OP , its a tough road and you will feel defeated at times , but keep trying and it will work out. |
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I know one guy he's an Eagle Scout as well as a college graduate, other than seeming a little off (lack of personal space). You would not even know that he is autistic.
I do recall that he was enrolled in a special program at a young age that was IIRC was tailored to him. YMMV. |
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if you place him in a public school, make sure a 504 Plan is written and he is properly evaluated.... the 504 Plan is part of the citizens with disabilities act, but opens up a wide variety of adaptions and accommodations available to you
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Only autistic person I know is my son's friend from Boy Scouts. He's an Eagle Scout, now an adult with college degree and good job. Relates a little differently than most young people, in a good way.
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I treat tons of "autistic" kids at my office. Great majority of them, I wouldn't even know, if I didn't look at their medical history. There are great advances in helping these kids. Keep your attitude positive, give your kiddo all the help he needs and it is likely he will achieve more than you may think.
Good luck and keep us posted. |
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Thanks all, I was up almost all night just trying to process everything.
Its been a mental trip just going back to all the little weird quirks like throwing up the moment he touches a raspberry and now realizing why that is. It changes things for sure. Biggest change is we need to bring in help. My wife doesn't drive, so my mother and I will split driving and running the biz. Now I get to train in my computer illiterate mother how to run an internet based company |
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My son is also high functioning Aspergers.
My wife is of above-average intelligence, and has recently been diagnosed with ADHD. You plays the hand that's dealt ya. It might help to look at it this way: Parents often complain that they wish there was a manual, or some set of instructions for raising children. With our childrens' conditions, we have access to many, many of those books, with a lot of professional support staff to help apply the lessons and knowledge. Be strong. |
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Sorry to hear that but probably not for the reason you would suspect.
First let me give you a little background. My wife has taught pre-school special education for ten years now. I pretty much live it every day and around more kids with issues than I ever dreamed of. Best advice I can give you is get him in a pre-school class. Despite being in the grade-schools, they're actually federally funded and the teachers not only actually required to be trained in special needs including mandatory continuing education but its really a whole team of people from outside the classroom. A good majority of the kids my wife works with are mainstreamed by kindergarten. Heck if you look at my Devil Niece, they're more advanced than she is. Its really not the 1950's anymore and if your kid not a perfect fit, you hide them away. Some things just mean they have to work at things harder or from a different direction. Now from a personal level, if every parent expected their kid to be a chip off the old block, we'd be damn dissapointed all the time and end up with kids that are screwed up for life. From my own life, its way more important they grow up to be a good person. You are just in the beginning stages of that. Nobody said parenting is easy and it damn sure ain't. Buck up man. Your kids no different only now you know. If he isn't trying to cook the cat in the fireplace, bouncing off walls, and you need to strap him down with noise cancelling headphones to ride in a car, you are a lucky man. The fact you got your kid, you are a lucky man. My best friend in life married the dumbest fat person I ever known. He had two boys one turned just like his dad and one like his mom with an IQ of about 80. While mom took a nap one day, the one like dad got out of the backyard, fell in the river, and drown. I can't imagine such a personal tragedy. For years I worried about the poor slow one left behind. You know what? He's still dumb as a rock but grew up to be one of the finest young men I have ever known. He's simply a pleasure to be around and despite his dad passing away, I still stay in touch with the kid and he's loved by everyone really. Boy could that have taken a different turn. We can't control who our kids are. All we do is influence those turns. That's what determines who they become. Physical things are overcome in life with time, patience, and persistence and are not even a handicap or overlooked entirely if they become a good person. Molding children they say is like molding clay. For some of us, its like molding brick. I sometimes think most of us. What I found is if you work on that who they become thing, the rest of it works its self out. They have some fantastic pre-school special needs classes in your sons age group. Ten years now, I've envied my wife in how rewarding her job is. She's had a few, she was convinced was going to be the next Newtown massacre shooter but by far most transition to living a normal childhood and really fast too. Now is not the time to lose heart. You've found out. Now you can do something. Its worse not knowing. Most of the kids my wife works with have autism. She's got a few physically handicapped like one poor little girl with no arms or legs, but most by far are working to get them out of that shell and they do too. Tj |
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Like others have said, school (or preschool). I know it a hot topic button here, schools vs homeschooling and if I remember correctly you homeschool.
I tihnk a kid needs to be around kids. The evil gov. endoctrination part you can take care of yourself. I do it with my kids and I'm pretty happy with the results. Nope, they havent turned into gay liberals Hillary loving idiots. But back to topic, kids need to be with kids. I at least see it as the natural, normal thing to do. I'm no doctor but in you son's case I think its especially important to not only be iwth other kids, but get help by people that are actually qualified to help a child with his condition. Best of luck. ETA: If he can handle it, try getting him involved in some sport, especially team sports. it just does wonders for kids. My youngest one was a bit picky about physical contact, getting hurt and such. Now he's playing rugby without a problem. He got a bloody nose the other day and went to his coach, the coach said "that little bit of blood? thats nothing!" splashed water from a bottle in his face and sent him back in. |
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My son is also high functioning Aspergers. My wife is of above-average intelligence, and has recently been diagnosed with ADHD. You plays the hand that's dealt ya. It might help to look at it this way: Parents often complain that they wish there was a manual, or some set of instructions for raising children. With our childrens' conditions, we have access to many, many of those books, with a lot of professional support staff to help apply the lessons and knowledge. Be strong. View Quote This will blow your mind but if you think on it, it makes sense. Company CEOs. No kidding. Successful CEOs need to have high energy multitask and not dwell on the details thinking instead in macro. Those with ADHD simply learned how to channel successfully. When my son was little TN was the number 1 state in the US for giving out riddlin to school children. Being a traveler and only child, my son wasn't around siblings or extended families children. One day in kindergarten, they called me in and told me my kid had ADD. I was devastated. Determined to be a good parent, I research the hell out it. The more I read the more I was convinced he didn't but I did. I bucked the system and had him tested by a professional instead of taking the word of a speech teacher. He didn't. In fact, the physiologist had to pull him off the machine that was suppose to bore the crap out of him. You know what? Some 20 years later, here I sit wishing he had a bit more ADD with a hell of a lot more H thrown in. A lot of people my age wonder about why we didn't have this stuff when we were kids. They just can't remember. We did. What changed is someone drew a line in the sand is all. Now we have a line, you cross this, you have that is all. We've standardized so to say. Like my earlier post to our old friend Rat, this stuff is like all things in life. Its really not a matter of how we get it done only that it gets done and done right. Its who we are that's important not how we get there. Tj |
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The wife is a speech therapist specializing in treating kids with autism who also leads the clinics social skills classes. The important thing to note is autism is a relatively newer diagnosis and has a large spectrum. Often times you will have a specialist that is willing to give a diagnosis, and then another who isn't.
The official diagnosis does not change who your child is, but it does open you up to some insurance options that will help you afford the therapists you might want. There's not reason to feel like you "got kicked in the balls", think of it as a door opening where now you have a lot more resources available to you. |
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Like others have said, school (or preschool). I know it a hot topic button here, schools vs homeschooling and if I remember correctly you homeschool. I tihnk a kid needs to be around kids. The evil gov. endoctrination part you can take care of yourself. I do it with my kids and I'm pretty happy with the results. Nope, they havent turned into gay liberals Hillary loving idiots. But back to topic, kids need to be with kids. I at least see it as the natural, normal thing to do. I'm no doctor but in you son's case I think its especially important to not only be iwth other kids, but get help by people that are actually qualified to help a child with his condition. Best of luck. ETA: If he can handle it, try getting him involved in some sport, especially team sports. it just does wonders for kids. My youngest one was a bit picky about physical contact, getting hurt and such. Now he's playing rugby without a problem. He got a bloody nose the other day and went to his coach, the coach said "that little bit of blood? thats nothing!" splashed water from a bottle in his face and sent him back in. View Quote Tj |
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Another comment on the sports thing. 3 is young, but I'll throw it out there for the crowd.
There are plenty of studies/articles now on the benefits of sports for ASD. My own opinion is that team sports that lean toward individuality -- track, for example -- work pretty well. Some social learning can take place, they can learn to goof around and be "one of the guys" (which helps socially in school), there is a team goal (winning) and they can support it, but the activity and performance focus is personal: the athlete and the track. |
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It means a lot of extra patience and effort on your part, but hold to hope. They often prove themselves capable of more than you'd expect as they grow up.
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Good post as usual but I would like to add, we took a different tact on the sports thing. We got our son into martial arts. Its still a team sport, group activity / team competitions, but its way more progress individually at your own pace. Man, you think soccer or rugby is hard on a parent, try marital arts. Its 3-5 times a week. That said, it gives the kid a social group outside their normal groups like school and church and martial arts kids are good kids. Bad kids don't take to the discipline. Its really not what most people think either. These kids square off when they are ready all the time so there's nothing for them to prove outside their training. They're actually less likely to fight etc. When they are forced though, its way more "Oh boy I get to use this stuff". A good school builds character and at least in the US, they're the most ethnically and culturally diverse environments for children without all the PC crap. Tj View Quote |
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I have known a family with a son my age with Autism, and fully functioning, works in a workshop, does family shopping regularly. Other than lack of communication skills, he is just fine. Dad was fully self-sufficient, fixed everything from plumbing to electrical. His dad passed away recently and he now fixes everything dad used to fix. Mom asks "How do you know how to fix that John? and he said he watched dad do it. I understand there are many levels on the spectrum so work with him as you feel fit.
Best of luck to you and your family. Bill |
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I don't know how much you know about ADHD yet but did you know the number 1 profession in the US with ADHD? This will blow your mind but if you think on it, it makes sense. Company CEOs. No kidding. Successful CEOs need to have high energy multitask and not dwell on the details thinking instead in macro. Those with ADHD simply learned how to channel successfully. When my son was little TN was the number 1 state in the US for giving out riddlin to school children. Being a traveler and only child, my son wasn't around siblings or extended families children. One day in kindergarten, they called me in and told me my kid had ADD. I was devastated. Determined to be a good parent, I research the hell out it. The more I read the more I was convinced he didn't but I did. I bucked the system and had him tested by a professional instead of taking the word of a speech teacher. He didn't. In fact, the physiologist had to pull him off the machine that was suppose to bore the crap out of him. You know what? Some 20 years later, here I sit wishing he had a bit more ADD with a hell of a lot more H thrown in. A lot of people my age wonder about why we didn't have this stuff when we were kids. They just can't remember. We did. What changed is someone drew a line in the sand is all. Now we have a line, you cross this, you have that is all. We've standardized so to say. Like my earlier post to our old friend Rat, this stuff is like all things in life. Its really not a matter of how we get it done only that it gets done and done right. Its who we are that's important not how we get there. Tj View Quote She owns and operates her own business, and I often find myself with a phone on each ear. We regularly take turns skimming the top and doing deep dives on plans or projects around the house, as well. On a related note, one of the staff at the diagnostics center told us about their favorite family game: Spot the Engineer. Good on ya for getting a more qualified opinion, and I'm encouraged to hear that its working out for your son. Congratulations on helping him find a good place to grow. Mine seems to be on track to one day become a professional builder for Lego. Come to think of it, it seems like there's always been "special" kids. Back in my day they just called it being "high strung" or "excitable" or even "very, very focused." The key for us seems to have been finding balance...which is probably why we like it out in the country. Things move at their own pace, and you'll get a lot further just accepting that instead of trying to change it. Much appreciated and understood, Sir Take care (time to go give him a hug) |
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Lots of god info above. I have twin13 year old girls, one more sever than the other. Funny but the one that is high functioning gives me the most stress.
No diagnosis will ever diminish the love I have for either. Just put one foot in front of the other and repeat the next day. Joy is in the details. Of course you will need to thicken your skin, especially on GD! |
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Talked to wife on how to start that you can do at home.
They have this program they call "Pecks" for some reason I don't get. It really stands for Pictures. Its a transition phase they use to get them to talk. You take pictures of their favorite things and make cards out of it. Then you get them to hand you a card if they want something. Juice, for example, a picture of juice. Three is the age they start them in pre-school special ed around here. Potting training and changing diapers are a who's turn is it today. Its every day in the class. Some kids are in and out with their special need addressed. You know I'd say most kids really. A much smaller number move on to higher level special needs classes and very rarely (they don't use this term anymore) is one institutionalized and that's mainly because they have the parents from hell. Sometimes that's literally too. They got this set now with updown crosses in their house, dead animals under the floors, and pentagrams tattoed on their skin. The poor kids a mess, major behavior problem, threatening to kill people and as dead serious as a 3-4 year old can be, and the teachers actually laugh behind closed doors that he has perfect grammer in using the "F" word which comes out of the little guys lips every sentence. You see what I mean? His case he has both a special needs issue and an environment that has to be addressed. Now this said, ten years, my wife has only had two, only two. The other one once moved to mainstream use to strip off, tell the whole class to "F" off, stand on a desk, try to pee on all of them, then dart out the door naked to run in front a car. Strange as this sounds, his real problem was he was a danger to himself. By far, the vast majority of children are just a little slow here or there and they either need to catch up or learn the special trick that works for them for lack of a better word they don't use, be normal. They go from special needs pre-school right into kindergarten then we only see them at restaurants or stores where they usually scream my wife's name and run up and give a hug. Well there was one exception. Funny as hell too. Going to dinner one night, there was a line outside. Sitting there was a little guy, cut little fellow. He took one look at my wife and started bawling like a baby screaming, "I don't want to go to school." Everyone got a good laugh because you talk about mainstreaming, man, that's mainstreaming. Though its frowned upon and technically against the rules, my wife has made friends with a lot of parents over the years. You can't help it as they share a child's affection. Amazing how little kids totally out of it in many ways click right in step once in a group, see other kids doing something. They have team support on this stuff, speech therapists, physical and occupational therapists, physiologists, nurses, etc. and each child's curriculum is designed specifically around their needs. Its this much this a day or week and this much time with this person or that one. Very rarely is social services involved. That's considered counterproductive and only in cases of suspected abuse. Parents are part of the team and attend meetings regularly to discuss the program goals specific for their child and have input. Now the good or bad news is, its not at that age typically an all day thing, regular school hours. Depending on their needs, they get placed in classes with similar needs and it can only be a couple hours a day so many days a week. Its quite impressive all the shared information nationally on evaluation and defining what works then constantly adjusting. Because its very typical these days for both parents to work, its not uncommon for grandparents to be involved in the schedules for pick up etc. and some little ones go right from school to a day care. Its really all over the place depending on a circumstance. Now the good news is very often the pre-school special needs class in our county a child goes to isn't even in the school they will attend. Sometimes it is. Its a circumstance of where you live, where the classes are, and what needs are needed. Unlike things like speech therapy in kindergarten, it doesn't follow them all through grade school. That's kind of the idea of a pre-school program, address it early. Home schooling isn't like it use to be either. There's all sorts of support groups now for like minded parents of home schoolers to mainstream so there is no lacking of social skills (another way of saying putting up with the problem kids). I can't advise you on home schooling or private schooling. In retrospect, I often question my decision to have my boy go to public school. The time we spent undoing the PC crap and/or filling in the blanks, we came pretty close to having the same effort. I do think its the effort that counts. Three though is very young. My little guy which one big ole guy now, wasn't talking at three either. I often think it was because mom has ESP and just met his needs before he had to vocalize it. Though a parent will never be satsified and always want more for their children no matter what age they are, I had to admit, my boys a good person. In that I have been very lucky. He hasn't put me through a 10th of what I did my parents but then that's yet another one of those don't know its and retrospect things you realize years down the road. Tj |
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The official diagnosis does not change who your child is, but it does open you up to some insurance options that will help you afford the therapists you might want. There's not reason to feel like you "got kicked in the balls", think of it as a door opening where now you have a lot more resources available to you. View Quote The diagnosis doesn't change your child, it opens a virtual floodgate of options for assistance in getting your child the help he needs. That is the big difference between autism today and autism 20 years ago. We know a lot about the spectrum today and we can help these kids to become more normal, yet grow the areas where they have strengths. There are a TON of autistic people in STEM (Science, Technology, Engineering, & Math), this diagnosis isn't a bad thing. |
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TJ:
That is a great post, thank you. We homeschool our 10 year old. Love it. He has a gifted brain, if he can channel it. I mean the kid can remember the scientific name if any dinosaur he has ever heard of, forgets how to multiply couple times a week. If he cares, it's incredible what his mind can do. I'm hoping to homeschool the 3 year old as well, our local government indoctrination system isn't very good, and neither is the private school. Luckily there are lots of homeschooling families out here. We go to msp late week, new clinic so we have an appt with the lead MD then behavior specialist in a few weeks. We actually just started the picture thing a couple weeks ago. Didn't know it was a thing. |
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He and your family will find a way to thrive. There is a massive infrastructure of help and hope out there for those of us in and with the spectrum.
The hardest part is letting go of your pre concieved notions, and taking advantage of the new possibilities. Slow down, be amazing and he will be too. |
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Sorry to hear that OP. I spent the afternoon with my autistic nephew. Most research says noninflammatory keto diet is best for all things brain this so we started prepping in that direction for all the family with brain issues. I like the amen clinics research. View Quote http://www.sciencedirect.com/science/article/pii/S0031938416303389 |
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My 8 year old son is autistic and has Downs Syndrome. Due to the Downs he had a heart defect that was connected and had to have open heart surgery at 8 months. He was asleep for 20 hrs a day till the surgery. But he didn't have the energy to eat and developed a oral aversion. So he is on a feeding tube. He is able to talk some, laugh, cry. He knows what he likes and doesn't. But the thing that has helped him the most is my 3 year old son and 1 year old son. They get him to do things that my wife and I cannot. I love all my kids but he is special and when he dies something new it is the highlight of your day. One super annoying thing is some friends and family don't understand what is involved when you try and explain that going to a ballgame or race or a loud event is not going to be fun for him. Hang in there OP. Your not alone.
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Autism is better understood now than it was when I was a kid in the '80s. There is tons of help out there. Get it, and your son will do fine with the right help. ABA helped with my son quit a bit, and at almost 10 years old he functions fine in a regular classroom and socializes normally with kids his age and older. Part of his learning disability, or inability, was dyslexia. All his reading comprehension problems disappeared after getting the help he needed at school and the coaching he gets from me and my wife. He reads voraciously and can do math problems at his level.
Stick with it and help your son. Your wife will may need help too, as this can be a daunting endeavor emotionally. The love of a strong family will help your son and make your bonds stronger. |
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TJ: That is a great post, thank you. We homeschool our 10 year old. Love it. He has a gifted brain, if he can channel it. I mean the kid can remember the scientific name if any dinosaur he has ever heard of, forgets how to multiply couple times a week. If he cares, it's incredible what his mind can do. I'm hoping to homeschool the 3 year old as well, our local government indoctrination system isn't very good, and neither is the private school. Luckily there are lots of homeschooling families out here. We go to msp late week, new clinic so we have an appt with the lead MD then behavior specialist in a few weeks. We actually just started the picture thing a couple weeks ago. Didn't know it was a thing. View Quote This I can tell you, the pre-school special ed is though in a school is almost like a totally different school. Its a federal thing that they even have their own management and have to meet federal guidelines. Very few of the children here actually end up going to the school they had their pre-school special ed. Its whole goal is to get children over the hump so to say so they can mainstream whatever direction that is. Just check your state laws on homeschooling which I'm sure you have. TN, for example, has this BS thing if in the system, you have to stay in the system, but even then the exception is special needs pre-school. Though they cover the basics of pre-school, their real aim is to teach a child how to learn to their specific needs. It surprises me how successful they are. Sounds like you are just in the beginning stages, defining the what and the need. Stay encouraged because like I posted, they're no different just now you know and now you can address it. Its just one more bump in the road of life. You'll have way more even bigger ones than this. I look back when I was a kid and wish we had programs that identified and addressed things like Autism. Although three even four is still really early, its so important to get over those humps in their learning so much stage. Kids grow out of all sorts of things and often so fast it blows your mind. Tj |
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I've been reading replies, but very busy and not responding, sorry. My wife has had some health issues this week that have come up (nothing serious) so she has been out of action for a few days. Combined with all the normal spring homesteading stuff, and its been kind of a crazy week around here..
Just got back from his first appointment from the new clinic in the cities that specialize in behavioral issues. Blood and other tests will get scheduled on Monday, as will a speech therapist. As soon as the doc went to check ears/etc, kiddo got pissed off (as expected) and opened the door and started to leave. Doc said that is a great thing actually. Will know more in a few weeks. What we know so far: On the spectrum, but high functioning. Sensory issues. Communication is there, but very delayed, so there is a decent chance we can get him up to par by kindergarten age if he actually gets anything from classes, but he as my 'don't give a damn about what others are doing/saying' kind of attitude. Chance it will all be on mamma and I. |
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I knew my son was different at around 9mos. We started therapy for food and speech at 1yr and he was officially diagnosed when he was 2. My son sounds much like yours as the key early signs where sleep issues, eating issues and speech delay. Years ago his diagnosis would have probably been asbergers syndrome, but now everything is under the ASD umbrella because of insurance. Therapy for ABA, speech, food are key! My son is 4 now and is almost exactly where he is supposed to be in all areas and even excels in other areas well above his age.
This is a marathon not a sprint. This will take dedication from you and your spouse to work with him as its all about routine and repetitions. Just remember you don't love him any different. I know its scary cause the future has a giant question mark on it right now. Believe me its all about therapy in these early years. At least you had the courage to have your son evaluated after you noted delays within a reasonable time. The diagnosis will help unlock insurance coverage for the therapy and there are different scholarship programs in different states to help pay the copays. My wife found one that we were awarded and now the copays for therapy are billed right to it and it covers other approved items for his treatment and education. We are lucky that we have good hope for thw future with the improvement we have seen that he will be able to live his own life. He actually displays some signs of brilliance which is not uncommon for the traditional asbergers/high function asd. They say steve jobs had asbergers, and he changed the world! So sky is still the limit for your kid. Just get aggressive with therapy. We currently go 4x a week. In the first year it was 5x a week. And we plan to home school. Feel free to contact me anytime. |
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My next door neighbor's son is autistic. Unfortunately he will never be able to function independent of his mom. But I have known him since he was little; and him and I have better conversations that I have with normal people.
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My next door neighbor's son is autistic. Unfortunately he will never be able to function independent of his mom. But I have known him since he was little; and him and I have better conversations that I have with normal people. View Quote The better choice of words would be a "non affected person". Im sure your neighbor would appreciate it. |
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My son is 9 years old and has Asbergers or high functioning Autism. He has tested over 140 on IQ. He he socially a mess. He would rather discuss ancient architecture, space travel, history,etc. He talks and communicates well with adults, but he is not interested in typical kid things.
He does well in public schools, except for a rare meltdown. I am trying to find a way to afford a private school that has a program that can help him learn on his level. His doctors say he is one of the most intelligent kids they have ever treated. But public schools are just boring for him. So as working parents we are trying to find solutions for him, but our income cannot support private schools at this time. And options are limited in West TN. Trying to keep my little sponge happy, well fed, and out of trouble. We enjoy learning together and he amazes me everyday. |
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